Dr Nick called...he feels like the trial here would be the best drug to try (entrectinib). Hooray! Another big think to be thankful for!
We have to wait 3 weeks from her last dose of immunotherapy, so we'll sign paperwork and go over details next Wednesday. She will then likely start it the week before Christmas. She'll have to take 4 pills (or maybe 2 or maybe a powder form if possible...this may be tricky at first to get her used to swallowing pills) every day (monitored closely the first day/dose). She'll go once a week for labs/monitoring for the first month (not sure yet) and then once a month after that. Side effects could be fatigue, dizziness, diarrhea, vomiting, constipation, change of taste...not pleasant but totally manageable.
I don't know why all of this is unfolding as it is, but I am so grateful. So far we have had the easier end of treatment and Ruby's quality of life has been preserved. So thankful.
ps Siri won her class spelling bee today! and Annie...love her
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