thack smack: You're alive today

Wednesday, May 28, 2008

You're alive today

Recently a family member has been faced with something that I don't think you can seriously think about or relate to until it happens to you: having cancer.

I don't get it. Why does it happen?

I don't know.

I just want to share what I DO know.

Because of the experiences going on in our family currently...I have loved my husband more, or I guess, just been more appreciative of all the things he does for me and that he is.
I've also been so grateful to be pregnant with our little baby girl. As Mark knows I worry very easily. He says worrying is a waste...I'm following his lead.

If you read this post, please just enjoy the sunshine more today and find a way to show the gratitude you have for your life.

Daily Thought Every day may not be good, but there's something good in every day.
-Anonymous

2 comments:

liz said...: ali, thank you for posting this. i needed to hear it today. i will be sure to keep your families in my prayers. love YOU!; May 29, 2008 at 1:20 PM
Elizabeth and Timmy Jenson said...: alice, that is very profound and Liz and i appreciate what you wrote. You guys will be in our prayers.; May 29, 2008 at 9:55 PM

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Our 3rd awesome daughter was born March 2013 with a large vascular mass on her neck, diagnosed as an atypical nodular melanocytic proliferation. Surgery January 2015. There was worry of melanoma in the mass after being removed, but all her scans were clear until...March 2016 Ruby was diagnosed with metastatic melanoma, two weeks afer her third birthday. Tens of spindle cell tumors in her lungs. We tried an immunotherapy drug April/May 2016 that may have been the cause of stabilizing the tumors. Back on Nivolumab January-November 2017. A visit to St.Jude Childrens Research Hospital and further testing there discovered a gene mutation in the lung biopsy and a couple drugs that target it. She has been on a clinical trial (phase 1 drug) of Entrectinib since December 2017. She had surgery Feb 2019 to remove some suspicious (but benign) looking tumors and got her port out in May. She continues to take the drug every day and hospital visits every 4 weeks. Her most recent scans show there is no evidence of disease! She will continue on the trial drug for maybe another year or two.... in the meantime we are trusting in God and enjoying our time together.

Thank you for your love! If you'd like to donate to #RallyRuby you can go to GoFundMe.com/RallyRuby

You can mail funds, tax deductible, to:

TKJ Charities Inc.

2413 Royal Lane

Sandy, Utah

84093

They will match funds 20% and the funds are used solely for her medical bills and expenses related to Ruby.