Sorry no posts lately....lots of living in the moment.
Playing with Annie on the trampoline on a mild fall afternoon while sisters are at school.
Playing the game Apples to Apples before bed.
A trip to St.George.
Visiting friends and family.
Waiting at the end of the driveway, watching for sisters to come around the corner as they walk home from school.
Making plans. My mom's 70th birthday and a girls weekend while my sis is coming into town. Ruby and I are heading to St.Jude in a couple weeks. It will be short and sweet but I hope to learn more and get some insight as to what we could do if we need to change treatment for her. Mark is getting his "man surf trip" plans organized. This will be the 5th year!
Last week Mark was asking me about my goals. Long story short, I ended up doing deeper thinking than I have in a while and recognized I've put future goals to the side. Living in the moment is so warm and I love soaking it in. But I also have really avoided thinking about the future. It's scary. It makes me worried, and sad. Do you feel that way?
What if the disease spreads? What if she starts feeling sick?
So I just avoid it.
With Melanoma you are never considered 'cured'. You would be N.E.D...no evidence of disease, but it could come back any time. And with Ruby, just keeping the tumors stable is a miracle. I haven't yet made any goals, but I know I should, and need to. Especially long term goals. Mark is always learning, studying, growing, progressing. I don't want to be left in the dust so I gotta get off the couch and join him!
Ruby will have her next infusion of Nivolumab Halloween morning...I can't remember what dose this is...28 maybe. She had her last soccer game today. I don't think she'll miss it as she asks, multiple times a week, when we can go swimming. I want to put her back in swim lessons just to get her more time in the water since she loves it so much.
Annie is 11 months old, turns one next month! So thankful for the little crawling bunch of sunshine she is. Her top two teeth are coming in so she does a great job of drooling all over the floor and then crawling over it. Counts as mopping right?
Jane had her last soccer game of the fall season today. I love that she loves it, and is great little player! I love that Jane is always up for a trip to the store, or a bike ride to the park with me :)
Siri cracks us up with the songs, rhymes, and jingles she makes up. We are looking forward to her piano recital coming up! Practicing is not on her top 10 list of fav things to do, but she's talented and its worth the effort. I also love so much seeing how she's transformed from a super shy preschooler to an outgoing caring 3rd grader.
Mark and I are working on not giving into wanting to make cookies after we put the kids to bed at night, and yard work.
Thank you for reading this. For thinking of our fam. Thank you for all the love and friendship. For the prayers and help on Ruby's behalf. We love you.
day trip to the cabin
Visited Dead Horse Point State Park and Arches/Moab
Hayes Tough Dream Ball!
Loved being gathered with so many amazing people and other cancer fighting families.
Nurse Becky is her fav
Our attempt at a selfie. It was windy. And I have 4 kids.
sister time in St.George
Workouting.
Mom bod after 4 kids doesn't get in shape as quickly as it used to.
Trying to be patient with myself. I'm older and creakier!
Our neighbors dog had 8 puppies. Looooove it.
Make a Wish trick or treating!
We'd never been before. Pretty sure we left with 25lbs of candy. After they gobbled up a handful of candy I offered to trade the rest for trip to Claires. They happily picked out a couple pairs of clip on earrings :)
fun times today! Got to have lunch together between Ruby and Jane's soccer games
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