Scheduled Ruby's next scan. This is the first time that its come up quickly, I had forgotten to schedule it! She'll do the "pirate ship" (chest CT scan) the 19th. She hasn't seen a dermatologist since 2015 so she'll go the 18th for a check. Sadly Dr Holly has moved to Tennessee to work at St Jude, but the good news is Rubys new doc, "Dr Nick" (Nicholas Whipple) just came from St. Jude. Its been not my favorite switching doctors but I appreciate a new set of eyes and his thoroughness. I'll miss Holly's friendship and understanding as a mom.
We were in Colorado Springs this past weekend for the 4th annual Pediatric Melanoma Summit. The drive there on I 70 was long but really beautiful. It was great to meet other families, see what the diagnosis is, treatment, where, etc. The woman to headed it all up works for the MRF but also has a survivor daughter. She drove all the way from soaking Houston, she's amazing! Ruby was the youngest patient and the only stage IV. She adored a 13 year old girl named Marit who is a survivor. Our room had a view of the Air Force Academy. Annie got sick while we were there poor girl, if I have what she got I feel so bad for her! She seems better but now has a rash on her face/neck/back.
I'd been excited about this trip for months, but the night before we were to leave, I turned into angry mom. I realized how upset I was, putting in all this time and effort because of stupid cancer. We have learned lessons and met people we never would have, and I'm so thankful. But there is always that sadness that my mind touches on once in a while that this could take Ruby's life. And I think at this moment as I write, I'm more worried since her scan is next week. Last night she came in our room crying that her legs hurt. My mind jumps to...what if it has spread? Mind games are hard. I count my blessings daily that she has felt well this whole time, I'm so thankful for that!
they have super cute socks and ties, go get some!
The brand Coolibar gave each cancer cutie an outfit and they did a fashion show
we both enjoyed a break from all the fun
thank you Kris for your visit!
first day of preschool!
and more scrunch face from our fluffy hair snoog
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