Thursday, December 15, 2016

1/16

Lil Annie failed her oxygen test. I wasn't surprised because of the numbers I saw on the meter when I fed her at night at when I went to get her in the morning.  At the same time, I want to test her again soon. I'm hopeful. Back up...to 'pass' the test she needs to be in the 90s most of the time. Ideally 95+. She's on 1/16 dose right now.  A small dose of oxygen is minor, but it keeps me from doing normal things like going on walks with her or taking her outside her room to other parts of the house.

I got to talk to her pediatrician in person about this because I had to, unexpectedly, take Ruby in to see him. She very likely has a UTI. We'll know for sure tomorrow.  Thankfully Liz came to the rescue, again, so that I could leave #2 and #4 at home while I was with Ruby. She also had Ruby in the afternoon while I took Annie to the cardiologist. Which took 2x as long as expected, but I was glad. They did an ultrasound of her heart, just to be sure it all looked good. She does have a murmur, but nothing to worry about. And we know her need for oxygen isn't because of her heart.

And can I just say how awesome the Make a Wish foundation is?  Ruby asked to go to the Nutcracker. I told her she was too young, maybe next year. (I think she could sit through it, but not sure, and its just so expensive). Make a Wish called today..."Would Ruby like to go to the Nutcracker and the Sugar Plum Fairy party afterward?" Yes!  So hopefully I can leave the babe and accompany miss Ruby next week. I'm sure you get sick of me saying this...but we just don't know what the future holds for her. It means even more to me to be able to take her this season. Millies Princess Foundation and the Miracle Mascots...there are a lot of good people out there doing amazing things for these kids! I love them and am so thankful!

Millie's Christmas party

Goodies in the mail from Grandma Jane! (Liz's mother in law)

snagglecords

mini mom
I'm thankful she says she wants to have a kid, 
because my lack of sleep and emotional state isn't super attractive right now :)


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