thack smack: the worst best night

Saturday, February 12, 2011

the worst best night

Last night was the best night yet for Jane. 9:30pm-6am. Unfortunately for me I woke up about 3:30am and never went back to sleep...thus it was the worst best night. I switched out most of her newborn clothes for 3m clothes. They're a little big, but rather too big than try to squish her into newborn stuff that is too short.

I went for a run this morning and could have worn shorts. Oh how nice that sun felt!

Mark has to go out of town for work for the next five days so I'll be going at the two-kid thing alone for the first time. I easily admit that I'm nervous. Mostly nervous that I'll turn into a crazy mean mom. I hate it when I do that. So, I'll try to enjoy the whining, poopy diapers, trying to appease 2 girls at once, and staying home more than usual as best I can.

And, is Cheesecake Factory really that good? Yes, yes it is.

1 comment:

lizard said...: Oh Ali you call if you need anything! We are super available and Tess is a great substitute mom, except when she get's tired of her babies she starts using them as soccer balls...; February 12, 2011 at 8:58 PM

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Our 3rd awesome daughter was born March 2013 with a large vascular mass on her neck, diagnosed as an atypical nodular melanocytic proliferation. Surgery January 2015. There was worry of melanoma in the mass after being removed, but all her scans were clear until...March 2016 Ruby was diagnosed with metastatic melanoma, two weeks afer her third birthday. Tens of spindle cell tumors in her lungs. We tried an immunotherapy drug April/May 2016 that may have been the cause of stabilizing the tumors. Back on Nivolumab January-November 2017. A visit to St.Jude Childrens Research Hospital and further testing there discovered a gene mutation in the lung biopsy and a couple drugs that target it. She has been on a clinical trial (phase 1 drug) of Entrectinib since December 2017. She had surgery Feb 2019 to remove some suspicious (but benign) looking tumors and got her port out in May. She continues to take the drug every day and hospital visits every 4 weeks. Her most recent scans show there is no evidence of disease! She will continue on the trial drug for maybe another year or two.... in the meantime we are trusting in God and enjoying our time together.

Thank you for your love! If you'd like to donate to #RallyRuby you can go to GoFundMe.com/RallyRuby

You can mail funds, tax deductible, to:

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They will match funds 20% and the funds are used solely for her medical bills and expenses related to Ruby.